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Our December Grant Reciepant – Lydia

So please to award our December grant to Lydia! Lydia is 14 years old, has Pervasive Dyspraxia (or DCD, Developmental Coordination Disorder) combined other neurodivergent quirks, plus a recent confirmed diagnosis of a rare genetic disorder. Up until now, Lydia’s family have funded her therapies themselves and have only recently applied for NDIS support. Lydia’s

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Inclusion, Equality and Respect… It Isn’t Too Much to Ask?

I chose not to let it go, because I felt that wasn’t justice for Frankie and all the people with disabilities or special needs that get treated disrespectfully everyday because they were born different or became different to what neurotypical people decide what is ordinary or accepted. My advice, seek and you shall find, educate, advocate and continue to spread awareness.

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Our First and March Grant Recipient – Reena McIntosh

This is our first grant recipient Katie McIntosh and her beautiful little girl Reena who has Spinal Muscular Atrophy (SMA) type 1, treated symptomatically from 5.5 months of age. SMA causes weakness in all Reena’s muscles, including those required to move, eat, breathe and speak. Reena uses a power wheelchair to mobilise, is primarily g-tube

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