The Frankie Foundation has been born out of the need to help bridge the NDIS gap between funding and therapy needs for many Australian families.

The Frankie Foundation

The Frankie Foundation is named after our founder’s daughter, Frankie, who has a rare genetic condition, special needs, global delay and medical complications.
Many families with young children in particular (under 12) are getting under funded or just get plans that don’t go the distance (the budget doesn’t last the period of the plan). Reviews can only be done a minimum of 100 days out for plan expiry and take a minimum of 6-8 weeks to approve, this leaves of children with no remaining budget. Families are having to find funds from their family budgets or stop therapy altogether until the new plan can be approved and the budget released. Children are at risk of regression without therapy and in many cases they will lose therapist, as the waitlist for therapist and assessments is around 6 months.
Child with glasses. The Bridging the gap in the NDIS for many families.

Our goal is to offer families some support by awarding grants from $200-$2000 to pay for their child’s therapy. This may be 1 session or 10, depending on how much gap they have and what we can provide.

Kym Gleeson Founder - The Frankie Foundation

Founder - Kym Gleeson

Meet Kym.

One passionate, driven Mother who recognised the need to help families just like hers. 

Kym has had a career in media sales, marketing, communications and commercial outcomes over 25 years. A mother of a child with disabilities, special needs & rare disease, Kym strongly advocates for equality, inclusion and accessibility and a fair go for every child regardless of ability. 

A Contributor, writer, panellist and currently studying Diploma of Community Service.

Our Committee.



Kym is the founder of the Frankie Foundation & Co Founder of Acrodysostosis Support and Research and Frankie’s committed and devoted mother. Kym is passionate about inclusion, accessibility in education and community. And creating and providing equal opportunities for people with rare disease, disabilities and additional needs, to ensure everyone has the opportunity live their best life. Kym comes from a media and advertising background that spanned over 25 years in commercial outcomes and marketing in Radio, Print, Digital, Outdoor and Publishing industries.



Co-Founder of the Frankie Foundation, Frankie’s devoted Dad. Michael is a proven real estate sales expertise, a solid sales management background and high achievement aspirations all contribute to Michael’s reputation in the Sutherland Shire as an outstanding professional who thrives on the rewards of negotiating successful outcomes in volatile market conditions. 
Michael is a passionate advocate for children with special needs and rare disease.


An accomplished Commercial Leader with over 25 years experience in corporate strategy, business development, advanced data analytics, financial management, customer loyalty, digital & business transformation, operations and change management. FMCG, tech, retail and tourism industry focused with extensive experience in leading Global organisations such as Dunnhumby, Friesland-Campina, Nestle, Coca-Cola, Kantar Retail (TNS, Fonterra, J&J, GSK, BAT) – both within Australia and Internationally (Including 10+ years based in Singapore). Kylie is a strong advocate for mental health, children with special needs and equal rights.


With over 25 years in senior sales roles in media and travel. Darren has a keen interest in Animal Welfare, Civil Rights and Social Action, inclusive and accessible Education, passionate about Environment, Health, Human Rights and Social Services. Darren is a proud member of the  LGBTQIA+ community and believes in diversity, equality, compassion and understanding for all. 
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